The full article was originally published by SKALY on Medium. Read the full article here.


In our first milestone medium post we gave you a minimal inside look what the project is all about. Today, before you read about milestone 2 we let you all know about the project and why Freighter is so an important piece of the puzzle.

The project which SKALY is an part of has been organized by TNO and Health Holland(LSH). The Dutch Life Sciences & Health (LSH) sector is one of nine “top sectors” in the Netherlands. The top sectors are designated by the Dutch Ministry of Economic Affairs and Climate Policy and are selected on their ability to contribute substantially to global societal challenges.

This project has been named Preventive Personal Health Train, in short PPHT. With several consortium partners in this project which en-holds different companies and organizations like; universities, pharmacies, medical record companies, hospitals, GP and SKALY in the form of Dennis Schouten and Peter Willemsen.

SKALY is the innovation partner in this consortium, our goal is to demonstrate that decentralized infrastructure for personal healthcare is possible where the control always stays with the actual owner of the medical history (patient/customer).

Just a short memory lane for everyone, SKALY was invited by TNO to join and demonstrate the power of decentralized healthcare possibilities.

This project will focus on exploring/evaluate how the digital world can support communities and build a decentralized gateway that will reduce the amount of redundancy, and increase the access to health data and thereby accelerate the development of solid health apps and tools. The PPHT will support citizens in a healthy lifestyle. By using the data solution support can be given that will lead to a longer, healthier life.

Within this consortium we are able to demonstrate the power of IOTA, give control back to all citizens. Security and scalability is an very important factor here, as we are preparing to send big amount of data we needed another approach to uphold the demand within an decentralized network.

That is the birth of freighter, protecting consumer health data privacy in an increasingly connected world.

The standardization of data (milestone 2)

Today we are releasing milestone 2 of the PPHT project towards creating a decentralized health data infrastructure. In this milestone we will cover the standardization of data, which are build upon the five pillars set by all project members within the consortium.

  • Privacy
  • Transparent
  • Data (re)usable
  • Open standards
  • Controlled by the individual

This milestone focuses on those pillars within the data standardization. The tooling and open data standards are developed generically (FHIR) in such that they are easily extended to other health areas. Our first proof of concept (PoC) aims at the collection, standardization and governance of health and medical data for Personal Health Vaults (Freighter).

The focus of this PoC will be the feasibility of collection, standardization and implementation of the model for both consumer health data and medical data (figure 1). The data for the standard set will be collected in a Personal Health Vault provided by the TNO project partners in which data is under control of the health consumer. The collected and controlled consumer health data will later be coupled to services that can give personal health advice.


Read the full Article

The full article was originally published by SKALY on Medium, where people are continuing the conversation by highlighting and responding to this story.

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