Untangle Care — Milestone #3 Update
The full article was originally published by André Fialho on Medium. Read the full article here.
The goal of this article is to provide an update on our Untangle Care grant. This is a project that, by leveraging distributed ledger technology, aims to put patients in more control of their healthcare data and, at the same time, to address two problems in healthcare:
- The high risk of sensitive and valuable healthcare data being contaminated when stored and/or exchanged between parties
- The integration barriers and data silos created in healthcare due to the proprietary formats used by different healthcare vendors
This project proposes the combination of two technologies to address the above two challenges — IOTA and HL7 FHIR.
IOTA (in particular its MAM Layer) allows, on one hand, the secure transition and storage of individual health information on the IOTA distributed ledger. On the other hand, it allows the free and open flow of data, potentially breaking existing healthcare information silos.
HL7 FHIR allows formatting the data into an interoperable standard so that other healthcare stakeholders can more easily read it and reuse it.
In our view, the combination of these two technologies into an open source MAM FHIR module will enable future projects from the IOTA e-Health community to 1) more easily and securely exchange healthcare data and 2) put more users in control of their own health data. To facilitate the use of this module, two additional modules were developed — a FHIR API and a web-based user interface (the FHIR UI).
With the three modules in place (the MAM FHIR, the FHIR API and the FHIR UI) we were able to start building real-world prototypes. The first one aimed at helping Diabetes Type 1 patients to share their medical history and/or glucose data with their care team, in a fully interoperable and patient-controlled way. This prototype builds upon the previously published research article about GDPR compliant data exchange for this Diabetes use case.
The work within each of the modules of this project is now detailed.
During the last milestone we began evaluating the new MAM implementation. In the coming milestone, we will start with the implementation of the new protocol into the C# client library.
In parallel, with the help of the IOTA community members during the past months, we were able to significantly decrease the time that is needed to calculate addresses and private keys.
In this last milestone, we have also concluded implementing all FHIR specification use-cases into an open source FHIR API. This includes: version reading, updating, patching, deleting, history retrieving and batching.
The FHIR UI templates developed were based on interviews done with multiple stakeholders (patients and physicians) and have tried to best capture the industry needs regarding data accessibility and consent management.
The two templates developed include: